The Journey Continues

Well, today was rough. Theo got up at 5:30 to go to the bathroom and fell. More like slow motion crumpling, but same result. Anyway, it happened again later in the afternoon, but Em was standing next to him, per nurses orders. She wasn't much help because he is bigger than her, but he was talking to him during and he just said he was getting dizzy and then collapsed. They took his blood pressure in bed and it was normal, even bordering on high. Then they had him stand up and took his pressure again and it was ridiculously low. They determined that he was basically passing out when he stood up because his blood pressure was dropping when he was in standing position. They are thinking it is because he was dehydrated, so they stopped his lasics and gave him fluids. Then they gave him 2 units of blood. His hemoglobin wasn't super low, but it was trending downward so they figured he would need it in the next day or two, so that was a better choice to increase his body's volume. They also drew labs to make sure there isn't an infection that the steroids might be masking a fever for.

Anyway, he was pretty scared, but luckily they had done the MRI the night before and it came back clean with no swelling, which is mostly was Theo was worried about. He was feeling much better this evening and had a blast hanging out with Brady.

I am sure they will figure out what is wrong, but I dont know about a Monday release. To be honest, as much as we want out of the hospital, we want to make sure he is really doing well before they let him go. Too many little things keep coming up.

We will know more tomorrow or Monday. Love you all...

Theo Update Graftication.

THEO IS 100% ENGRAFTED!!!!! That means that all of Theo's cells are now the donor cells. This is the news we have been waiting for. We still have a long road ahead but at least we are now positive that the transplant was a success. Theo is in good spirits and outside of some stomach pain from the GVH and ulcer, he is feeling really well. Pray that we get transferred to the Ronald McDonald House on Monday. That will be a huge step on the road to recovery. Love you all...w/  Brant and Emily Schorr Menswar

Theo Update

‎Theo had a really good day today. His white count was 10.77 and his ANC was 8500. Those are about as high as they can get, so now they are going to stop giving him the meds that boost those counts and they will drop a little but then even out on their own. The good thing about stopping the neutrophil (ANC) medicine is that that is the one that can cause the bone pain. He only had a little discomfort today and Tylenol pretty much did the trick.

Almost all of his meds were already switched to pill form this morning, so the only thing running through his line for most of the day was heparin. They are weaning him off of the TPN (intravenous nutrition) and he should be off of that by tomorrow evening. things are really moving forward!

My bud Pw Gopal flew in to spend the weekend with us and brought Theo a sweet '63 Harmony Rocket Electric Guitar! He loved it. Then my pal Shane Winnings stopped by today to give Theo a smock from Iraq that soldiers wear to protect themselves from the sun and sand. Theo put it on and looked like a Camo-Ninja! 

All in all he had a great weekend. Brady comes over in the am to spend the day/night with us so the good times will continue!

Love to you all...
B