Waited til tonight to post. Had a really rough day. Theo was really disoriented this morning. The Dr ordered an MRI. It appears that Theo is having an adverse reaction to Cyclosporine causing him to show signs of something called PRES. Theo lost his vision temporarily on two occasions today. One of which caused him to fall in the bathroom. Needless to say, we are scared...Theo is extremely depressed and confused as to what is going on...and we all are just not dealing well at the moment. The Dr and nurses are being great and on top of everything. They have switched his meds and hopefully will reverse the PRES within 48 hrs.
The whole ordeal just sucks on so many levels...we pray no one ever has to experience this. Theo is tired of being a "poster child" and just wants to be a normal 14 year old. His faith is shaken to its core and he is just so angry and upset. I can't tell you what its like to watch your child suffer like this. We all just want to fast forward to next year when Theo is back to his old self enjoying life.
Until then...we sit and say it's going to be ok...and can't do a damn thing to help. That just sucks...
No comments:
Post a Comment